Patrick’s maternal side of the family hail from Rostrevor, Co Down. Patrick is a gorgeous little boy who has faced many problems in his short life but his ability to smile shows that he has the tenacity to fight to achieve the milestones that many of us consider normal.
Here is Ben’s story
Our son Patrick, who was born on 1 August 2014, suffered severe brain damage at birth. As a result of this tragedy Patrick has enormous challenges ahead and we are determined to give him the best shot at defying his prognosis, and we ask for your help to do so.
Patrick was born with no heart rate, blue and not breathing. It took over 10 minutes of resuscitation for him to take his first breath. Patrick was rushed to St. Mary’s hospital in London where he received “cooling” treatment for 72 hours, and during which time he could not breathe unassisted, was unable to suck or swallow, was fed by a tube and suffered major seizures. We didn’t get to hold him until he was over a week old. He spent three weeks in intensive care during which time he learned to feed orally, started to open his eyes and eventually we heard him cry. No parents were ever as happy to hear a child cry! Patrick had several EEGs, two MRIs, two lumbar punctures and numerous seizure medications before coming home with two terrified and exhausted parents. The MRI showed severe global damage to his brain, which was heartbreaking news for us and our families. Patrick has since had an early diagnosis of quadriplegic cerebral palsy with dystonia. We will not know the likely severity for years, but there is persuasive evidence that outcomes for children like Patrick can be improved with intensive early intervention from the right specialists. As a result, Patrick’s weeks are filled with a succession of appointments with physiotherapists, feeding specialists, gastro consultants, neurologists and many others.
We have learned so far in our journey that caring for a child with special needs is traumatic, exhausting and incredibly hard work. However, we are rewarded for the hard work when we see progress, like the first time Patrick reached out to grab a toy after months of holding toys in front of him, and we take great joy in seeing him achieve little “inchstones”.
Therapies cost a lot of money. We want to give Patrick the best opportunity to reach his potential and we need your help to get there. Please help us to do this by giving generously to Tree of Hope, and in doing so help to fund some of Patrick’s treatment and care needs over the coming years.
Please help us raise £50,000 for Tree of Hope to help Patrick receive therapies and treatments to support his long term physical and mental development.
Should we exceed the target amount (or if we do not raise enough funds, or if they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.
Should you wish to donate to PJ’s fund go to http:// http://www.justgiving.com Ben Jackson’s page.